Introduction

Introduction

Organisation Name
The Fragile X Society
Description

Set up by parents of Fragile X children, the Society provides support and information for families affected by Fragile X from those who share and understand their concerns and needs. They educate and advise the public and professional people about the prevalence and nature of Fragile X, in order to raise awareness and understanding of the syndrome, and to improve the care of all affected people. They encourage research into all aspects of the syndrome and publicise the results. Family membership is free.

Provides a helpline for Fragile X families who contact the Society and supplies information about Fragile X. Organises family conferences, publishes newsletters, booklets, papers, DVD, and conference reports.

Organisation Type
Registered Charity
This organisation provides support around
Emotional Support Living, Learning, Working
This organisation provides support for
Disabled People Families Parents Learning Difficulties Carers
Regions
South Gloucestershire Bristol Bath and North East Somerset North Somerset Somerset National
Areas Served (Further Details)
National
Is there a cost for these services?
No
Cost information

UK family membership free.

Concessions information

Membership, conferences and some publications free to Fragile X families and carers.

How can people access this service?
Self Referral
Business Hours
MondayCLOSED
TuesdayFrom 09:00To 17:00
WednesdayFrom 13.00To 17:00
ThursdayFrom 09:00To 17:00
FridayFrom 09:00To 17:00
SaturdayCLOSED
SundayCLOSED
Out of hours answer machine

Primary Organisation Details

Primary Address Details

Address 1
Rood End House
Address 2
6 Stortford Road
Town
Great Dunmow
County
Essex
Postcode
CM6 1DA

Organisation Contact Methods

Telephone

Services

Helpline

Helpline service?

Helpline Details

Telephone number
Will calls I make to this helpline show on my bill?
Yes
Helpline Opening Hours
MondayCLOSED
TuesdayFrom 09.00To 17.00
WednesdayFrom 13.00To 17.00
ThursdayFrom 09.00To 17.00
FridayFrom 09.00To 17.00
SaturdayCLOSED
SundayCLOSED

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