Introduction

Introduction

Organisation Name
XLH Network
Description

The XLH Network, Inc. was formed in November 1996 as an international volunteer group of people affected by or interested in XLH, or X-Linked Hypophosphatemia.

The XLH Network offers worldwide online support to people affected by X-Linked Hypophosphatemic (Hypophosphataemic) rickets, providing members with up-to-date information on diagnosis, treatment and the very latest research.

XLH is a rare genetic bone disorder that can arise spontaneously in newborns, and which is characterised by soft bones which in the case of the lower legs do not straighten well during childhood growth.

The support services offered by the XLH Network are free and all enquiries are warmly welcomed.

This organisation provides support around
Personal Health Services Living, Learning, Working
This organisation provides support for
Disabled People Families Parents
Is there a cost for these services?
No

Primary Organisation Details

Primary Address Details

Address 1
Elpha Green Cottage
Address 2
Sparty Lea
Address 3
Allendale
Town
Hexham
County
Northumberland
Postcode
NE47 9UT

Organisation Contact Methods

Venue Address Details

Contact Details

Contact Name
Larry Winger
Job title / Position
Founder and Subscriptions Manager

Services

Helpline Details

Will calls I make to this helpline show on my bill?
N/A

Reviews

To add your review, please log in or register.

What other people have said

This organisation has been rated (by 0 users)

Back to search results

My Favourites

Favourites are stored until you quit your browser. Please create an account or login to store your favourites permanently.

Printable Version