ATR-X Support Group

A support group for people living with ATR-X or alpha thalassemia, and their families.

We offer:

  • Telephone support phone at any reasonable time up until 21:00 hours
  • Contact with other families affected by the condition
  • Information on ATR-X
  • A private Facebook page that relatives may access following diagnosis

ATR-X is a genetic disorder that only affects boys. The effects of the condition include learning difficulties, a characteristic facial appearance and mild anaemia.

Contact details

Service details

  • Areas served: National
  • Is there a cost for these services? no
  • How can people access this service? Telephone
Updated: more than six months ago.
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